687724
JMQXXX10.1177/1077699016687724Journalism & Mass Communication QuarterlyMoon et al.
research-article2017
Article
Breast Cancer Survivors’
Contribution to
Psychosocial Adjustment
of Newly Diagnosed Breast
Cancer Patients in a
Computer-Mediated Social
Support Group
Journalism & Mass Communication Quarterly
1–29
© 2017 AEJMC
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https://doi.org/10.1177/1077699016687724
DOI: 10.1177/1077699016687724
journals.sagepub.com/home/jmcq
Tae-Joon Moon1, Ming-Yuan Chih2, Dhavan V. Shah1,
Woohyun Yoo3, and David H. Gustafson1
Abstract
This study investigated the role of breast cancer survivors in a computer-mediated
social support (CMSS) group for women with breast cancer. Applying a computeraided content analytic method, the present study examined the differences in
support provision between survivors and newly diagnosed patients. This study
further investigated the impacts of survivor-provided social support on psychosocial
adjustment of newly diagnosed patients. The results revealed that, compared with
newly diagnosed patients, breast cancer survivors provided more emotional and
informational support. Receiving emotional support from survivors contributed to
an improvement in the quality of life and the depression of patients. The effects of
survivor-provided informational support were not significant.
Keywords
breast cancer survivor, social support, CMSS groups, psychosocial adjustment
1University
of Wisconsin–Madison, USA
of Kentucky, Lexington, USA
3Dongguk University, Seoul, South Korea
2University
Corresponding Author:
Tae-Joon Moon, School of Journalism and Mass Communication, University of Wisconsin–Madison,
5115 Vilas Hall, 821 University Avenue, Madison, WI 53706, USA.
Email:
[email protected]
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Journalism & Mass Communication Quarterly
Breast cancer is a global public health problem, with an estimated 1.7 million cases
and 521,900 deaths in 2012 (Torre et al., 2015). Moreover, the incidence rate and mortality of breast cancer are rapidly increasing in the less-developed countries of Asia,
Latin America, and Africa (Global Burden of Disease Cancer Collaboration, 2015).
Although the mortality of breast cancer has decreased in the United States for the past
decade due to early diagnosis and advanced treatment, it is still the most frequently
diagnosed cancer and leading cause of death for women aged 20 to 59 years in the
United States as of 2015 (Siegel, Miller, & Jemal, 2015).
Once diagnosed with breast cancer, patients often find themselves in need of information about treatment, medication, and side effects (Leydon et al., 2000; Rutten,
Arora, Bakos, Aziz, & Rowland, 2005; Vogel, Bengel, & Helmes, 2008). They are also
confronted with psychological discomforts such as low quality of life, depression, and
concerns about treatment (Burgess et al., 2005; Meyerowitz, 1980; Reich, Lesur, &
Perdrizet-Chevallier, 2008). Providing adequate social support, therefore, becomes
important in buffering breast cancer patients’ stress from the cancer experience,
thereby contributing to better psychosocial adjustment (Butler, Koopman, Classen, &
Spiegel, 1999; Gremore et al., 2011; Kornblith et al., 2001). In particular, with
advances in communication technologies, a growing body of literature has addressed
the therapeutic benefits of participating in computer-mediated social support (CMSS)
groups: alleviating depressive symptoms (E. Kim et al., 2012; Winzelberg et al., 2003),
enhancing quality of life (Lieberman & Goldstein, 2006), increasing information competence (Gustafson et al., 2001; Han et al., 2008), and helping patients to be betterinformed about treatment (Høybye, Johansen, & Tjornhoj-Thomsen, 2005; Owen,
Klapow, Roth, & Tucker, 2004).
Some studies have suggested that breast cancer survivors can play an important
role in providing cancer patients with useful information and emotional support
(Falzon, Radel, Cantor, & d’Arripe-Longueville, 2015; Kreuter et al., 2008; Macvean,
White, & Sanson-Fisher, 2008; Pérez et al., 2014). After undergoing cancer treatment,
survivors can have a better understanding of treatments and related psychological difficulties and often report posttraumatic growth, which may assist them in sharing their
experience and knowledge (Campbell, Phaneuf, & Deane, 2004; Frazier et al., 2013).
In addition, as cancer patients consider survivors as more trustworthy (Falzon et al.,
2015; McQueen & Kreuter, 2010) and similar to them (Pérez et al., 2014; Wood,
Taylor, & Lichtman, 1985), survivors’ participation in social support groups may have
positive impacts on the psychosocial adjustment of other patients.
However, little is known about how breast cancer survivor’s participation in support groups contributes to the psychological adjustment of other cancer patients. Even
the few studies involving the supportive behavior of breast cancer survivors (e.g.,
Ashbury, Cameron, Mercer, Fitch, & Nielsen, 1998; Gray, Fitch, Davis, & Phillips,
1997; Sutton & Erlen, 2006) have mostly focused on dyadic peer relationships in a
face-to-face context. Given the growing popularity of CMSS groups in cancer care
(Walther & Boyd, 2002; Wright, 2016), it is important to understand the role of breast
cancer survivors in CMSS groups and the impacts of social support provided by survivors in terms of psychological adjustment of other new patients. This study, therefore,
Moon et al.
3
will examine what types of social support are provided by breast cancer survivors and
how they are different from the social support provided by newly diagnosed patients.
The present study will further investigate how the survivors’ support contributes to
psychosocial adjustment of newly diagnosed patients. Specifically, to analyze supportive expressions in a CMSS group, this study will adopt a computer-assisted content
analysis which combines an inductive approach with a conventional deductive content
coding approach.
Peer-to-Peer Support Groups in Breast Cancer
Treatment
Social support refers to the emotional (e.g., empathy, reassurance, and encouragement), informational (e.g., advice and direction), or instrumental (e.g., financial and
physical) resources provided by one’s social networks that help her or him to cope
with stressful events (Cohen, 2004; Gottlieb & Bergen, 2010). In particular, studies
have reported the benefits of peer-to-peer social support groups—either supervised by
professionals or not—where patients can communicate with other people experiencing
the same disease or similar health condition (e.g., Dennis, 2003; Dunn, Steginga,
Rosoman, & Millichap, 2003; Ussher, Kirsten, Butow, & Sandoval, 2006). Supportive
interaction with peers having common experiences may decrease feelings of isolation
and may increase a sense of belonging (Cohen, Underwood, & Gottlieb, 2000; Ussher
et al., 2006). Based on a shared identity and perceived similarity among peers, patients
in peer support groups tend to perceive information provided by peers as more credible (Petosa & Smith, 2014) and are more likely to engage in empathic communication
(Helgeson & Gottlieb, 2000).
In the context of breast cancer treatment, the benefits of participating in peer-topeer support groups have been well-documented. Women with breast cancer feel more
comfortable about sharing their emotions and concerns with those who have been
through the same experience (Silverman-Dresner, 1990). Therefore, breast cancer
patients have reported peer-to-peer support as beneficial in receiving emotional support such as connecting with other patients, feeling understood, and sharing important
information and knowledge (Gray et al., 1997), which in turn contributes to a better
quality of life (Ashbury et al., 1998) and lower psychological distress (SilvermanDresner, 1990).
Over the past two decades, a growing number of studies have investigated the benefits of peer-to-peer support groups in breast cancer treatment in the context of computer-mediated communication. Grounded in the buffering hypothesis (Cohen &
Wills, 1985), previous studies have found that social support in CMSS groups could
buffer the harmful physiological consequences of stress from breast cancer (Barak,
Boniel-Nissim, & Suler, 2008; Rubenstein, 2015). For example, depressive symptoms
such as feelings of isolation, hopelessness, anxiety, and a lack of interest were found
to be decreased in patients who received emotional support, such as empathy and
encouragement, from peers in CMSS groups (Batenburg & Das, 2014; E. Kim et al.,
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Journalism & Mass Communication Quarterly
2012; Winzelberg et al., 2003). Consequently, women with breast cancer reported a
higher quality of life after participating in CMSS groups (Lieberman & Goldstein,
2006). In addition, information exchange within CMSS groups contributed to an
improvement in information competence (Gustafson et al., 2001; Han et al., 2008) and
knowledge of breast cancer and its treatment among patients (Høybye et al., 2005;
Owen et al., 2004), thereby helping patients feel more in control.
The Potential of Survivors as Support Providers
Cancer survivors refer to women who have been diagnosed with cancer, who have
finished a set of treatment procedure (e.g., surgery, radiation therapy, chemotherapy),
and who are alive without a recurrence (Howard-Anderson, Ganz, Bower, & Stanton,
2012; Vivar & McQueen, 2005). As a former patient who has undergone the process
from diagnosis to survivorship, breast cancer survivors may have a greater potential to
be support providers because they have a better understanding of treatments and show
better psychological adjustment after primary treatment. Campbell et al. (2004), for
example, claimed that “those who have survived the disease have an understanding
and first-hand experience of the disease and its treatment that facilitates shared experiences” (p. 4). In a similar vein, Meyer, Coroiu, and Korner (2015) pointed out that
cancer survivors can be ideal support providers because they have “authentic knowledge of what it is like to live with cancer, and as such, they are able to bring a unique
perspective to the support process” (p. 300). Moreover, cancer survivors generally
present better physical functioning and emotional well-being than newly diagnosed
patients (Baker, Denniston, Haffer, & Liberatos, 2009). Survivors, therefore, may possess more resources to provide informational and emotional support to other patients
(Cameron, Ashbury, & Iverson, 1997; Gray et al., 1997). Consequently, as more experienced members, breast cancer survivors can take a leading role in social support
groups by providing information and their experiences of coping (Meier, Lyons,
Frydman, Forlenza, & Rimer, 2007).
Another important mechanism that assists survivors in sharing information and
providing emotional support is posttraumatic growth. Coined by Calhoun and Tedeschi
(1990), this concept refers to positive cognitive changes, such as the reframing of life
goals, appreciation of life, and increased spirituality, as a result of struggling with a
traumatic event. Many breast cancer survivors have reported posttraumatic growth
such as a better sense of connectedness with others, deepened spirituality, and reappraising life’s meaning in the aftermath of breast cancer treatment (Bellizzi & Blank,
2006; Cordova, Cunningham, Carlson, & Andrykowski, 2001; Manne et al., 2004;
Weiss, 2004). As Staub and Vollhardt (2008) noted, such psychological growth leads
people to have a greater awareness of others’ suffering; increased perspective-taking,
empathy, and sympathy; and a greater sense of responsibility for others’ welfare,
which can prompt people to be engaged in altruistic behavior, such as helping others
and providing support. Supporting this, some studies have found the relationship
between posttraumatic growth of breast cancer survivors and their prosocial behavior
such as helping others in need and providing emotional support (Frazier et al., 2013;
Hannah & Midlarsky, 2005).
Moon et al.
5
In contrast to survivors, newly diagnosed breast cancer patients experience greater
physical, emotional, and social distress resulting from a diagnosis of breast cancer and
its ensuing treatments (Hanson Frost et al., 2000; Tighe, Molassiotis, Morris, &
Richardson, 2011). In addition, because of the uncertainty of their treatment and fear
of death, women who are newly diagnosed with breast cancer need more emotional
support to manage their psychological distress such as common feelings of sadness
and vulnerability to depression, anxiety, and social isolation (Vivar & McQueen,
2005); moreover, they have greater needs for treatment-related information (Rutten
et al., 2005). Previous research on newly diagnosed breast cancer patients has found
high levels of unmet needs across a range of support domains, including psychological
and physical/daily living and informational support (Griesser et al., 2011; Harrison,
Young, Price, Butow, & Solomon, 2009; Sanson-Fisher et al., 2000). Newly diagnosed
breast cancer patients, therefore, tend to receive support from others (Davis, Williams,
Parle, Redman, & Turner, 2004).
Given these differences in the psychosocial status between survivors and newly
diagnosed patients in their potential to be support providers, this study predicts that
survivors will provide more emotional support (H1a) and more informational support
(H1b) than newly diagnosed patients.
Effects of Social Support Provided by Survivors
Some studies have provided anecdotal evidence showing that new patients could benefit more from survivors. For example, studies from the Reach to Recovery program
(see, for a detailed description, Rinehart, 1994), which offered matched one-to-one
peer support between newly diagnosed cancer patients and survivors, reported that the
quality of life of newly diagnosed patients had improved as a result of the supportive
communication with their survivor partners (Ashbury et al., 1998; Cameron et al.,
1997). Similarly, in a study of a peer-to-peer support program for breast cancer
patients, it was found that newly diagnosed patients (i.e., “sojourners”) perceived their
survivor peers (i.e., “navigators”) as being informative and empowering, thus contributing to the psychological improvement of new patients, such as enhancing their emotional well-being and self-efficacy (Giese-Davis et al., 2006).
Although it has not been clearly explained why newly diagnosed patients benefit
from emotional and informational support provided by survivors in the literature,
social comparison may affect the outcomes of interactions between new patients and
survivors. Grounded in social comparison theory (Festinger, 1954), Taylor and Lobel
(1989) proposed that people use either upward or downward comparison to cope with
stressful events. Upward comparison includes seeking affiliation with and information
from those who are in a better condition, whereas downward comparison refers to selfevaluation against others in a worse situation (Taylor & Lobel, 1989). Buunk, Collins,
Taylor, VanYperen, and Dakof (1990) later distinguished positive upward comparison,
in which individuals become optimistic to see others in a better situation (i.e., upward
identification), from negative upward comparison by which people become pessimistic to see others in a better situation (i.e., upward contrast).
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In the context of cancer care, a few studies have shown that (positive) upward comparison is related to the self-improvement of cancer patients, such as developing coping strategies, finding hope, and learning useful information (Taylor & Lobel, 1989).
Furthermore, women with breast cancer tend to have a greater desire for upward comparison, thereby seeking information and emotional support from better-adjusted
patients versus poorly adjusted patients (Stanton et al., 1999). Although the previous
literature on social comparison in cancer care has not specified the role of cancer survivors, given a better understanding of cancer treatment and psychological adjustment
of survivors (Baker et al., 2009; Meyer et al., 2015), positive upward comparison may
occur when newly diagnosed patients receive social support from survivors, which in
turn contributes to the psychological adjustment of new patients.
As discussed above, receiving social support within CMSS groups could contribute
to improvements in the psychosocial status of patients, receiving emotional support
was related to fewer depressive symptoms (Batenburg & Das, 2014; E. Kim et al.,
2012; Winzelberg et al., 2003) and a greater quality of life (Lieberman & Goldstein,
2006), and receiving informational support contributed to information competence
(Gustafson et al., 2001; Han et al., 2008) and cancer knowledge (Høybye et al., 2005;
Owen et al., 2004). However, based on a discussion on the potential impact of survivor-provided social support over that of social support provided by newly diagnosed
patients, this study predicts that survivor-provided social support will be more strongly
related to improving psychosocial status of newly diagnosed patients than social support provided by newly diagnosed patients. Specifically, the present study hypothesizes that survivor-provided emotional support will be more strongly related to
improving quality of life (H2a) and reducing depression (H2b) than new patient–
provided emotional support; survivor-provided informational support will be more
strongly related to improving of cancer information competence (H3a) and cancer
knowledge (H3b) than new patient–provided informational support.
Method
Sample
The sample of this study is collected from the Comprehensive Health Enhancement
Support System (CHESS) intervention study which investigated the effects of onlinebased support system for women with breast cancer. From April 2004 to April 2006, a
total of 661 newly diagnosed breast cancer patients were recruited from three cancer
institutions in Connecticut, Texas, and Wisconsin. They were within 2 months of diagnosis and were literate in English. Doctors and nurses provided brief information
about this study to potential and eligible patients. If the patients agreed to participate,
research staffs contacted them to explain the purpose and procedures of the study in
detail. Participants were provided a laptop to use during the 6 months of intervention,
or they were allowed to use their own computers. All computers were equipped with a
CHESS browser, which was installed to record the action log data of system use that
tracked every click and keystroke made by the participants. The study also supported
Moon et al.
7
Internet access fees up to US$30.00/month for the 6 months of the study intervention
when it was requested.
These newly diagnosed breast cancer patients were randomly assigned to one of six
experimental conditions: (1) Internet only (n = 112), (2) CHESS information service
only (n = 118), (3) CHESS information and communication services only (n = 109), (4)
full CHESS (n = 111), (5) mentor only (n = 106), and (6) mentor and full CHESS (n =
105). The CHESS system consists of information services (e.g., treatments, medications, and medical system information), collaboration services (e.g., action plans and
easing distress), and communication services (e.g., discussion group and ask-an-expert
services). Among these, the discussion group is a CMSS group with an asynchronous
bulletin board on which patients can share experiences and provide informational or
emotional support.
As the present research aims to investigate the impact of participating in CMSS,
only 236 participants, who could access the discussion group (i.e., Conditions 3, 4, and
6), visited the discussion group at least twice during their 6 months of intervention, and
those who finished both the pretest and posttest were selected for the analysis. The
sample consists of 76 participants from the CHESS information and communication
services only group, 81 from the full CHESS group (n = 81), and 79 from the mentor
and full CHESS group. The newly diagnosed patients in this study had a mean age of
51 years, and more than half of them reported having at least a bachelor’s degree (4-year
college). Regarding race, the sample included 90.1% Caucasian and 9.9% minority
women. Only 29 newly diagnosed patients reported that they lived alone (12.3%),
whereas the majority lived with family or friends (n = 204, 86.4%). Detailed characteristics of the patients are presented in Table 1. Among the 236 study participants, 76
patients belonged to information and communication services group, whereas 160 participants were either the full CHESS or the mentor and full CHESS conditions.
Prior research from the CHESS has provided a vast amount of empirical evidence
on the therapeutic benefits of social support within breast cancer CMSS groups: positive reframing (Han et al., 2008), increased self-efficacy (Namkoong et al., 2010),
enhanced emotional well-being (J. Kim, Han, Shaw, McTavish, & Gustafson, 2010),
and greater information competence (Gustafson et al., 2001). However, previous studies from the CHESS have paid less attention to the role of breast cancer survivors in
CMSS groups, and thus could not distinguish survivor-provided social support from
social support provided by new patients. As an initial study to examine the role of
breast cancer survivors in a CMSS group, this study allowed a total of 56 breast cancer
survivors, who had participated in earlier CHESS studies, to participate in the discussion group as volunteers. The researchers investigated how these survivors provided
social support to other newly diagnosed patients. The survivors in this study had been
diagnosed with breast cancer, had experienced a set of primary treatments, and were
alive without any sign of recurrence.
Between April 1, 2005, and May 31, 2007, 18,263 messages were posted in the
discussion group. Of these, a total of 7,841 (42.9%) messages were posted by new
patients, whereas 8,986 (49.2%) messages were written by survivors.
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Table 1. Sample Characteristics.
Race
Caucasian
Minority
NA
Education
Some junior high
Some high school
High school degree
Some college courses
Associate degree
Bachelor’s degree
Some graduate courses
Graduate degree
NA
Annual household income
less than US$20,000
US$20,001-US$40,000
US$40,001-US$60,000
US$60,001-US$80,000
US$80,001-US$100,000
more than US$100,000
NA
Living alone
No
Yes
NA
n
%
210
23
3
88.98
9.75
1.30
2
4
36
39
21
62
18
51
2
0.85
1.69
15.25
16.53
8.90
26.27
7.63
21.61
0.85
12
31
38
37
43
56
19
5.08
13.14
16.10
15.68
18.22
23.73
8.05
204
29
3
86.44
12.29
1.27
Note. NA = not applicable.
Data Construction
The data in the analysis consist of data from a survey (pretest and posttest), outcomes
of computer-assisted content coding, usage log data, and message database files. The
study participants (i.e., newly diagnosed patients) were asked to complete the pretest
before they participated in the CHESS system and the posttest after 6 months of intervention. Information regarding the demographics, psychological status, and health
condition of the participants was obtained from the pretest and posttest surveys. To
analyze the content of expressions in the discussion group, this study conducted a
systematic computer-aided content analysis using the InfoTrend system. The outcomes
from the content coding were combined with the action log data and message database
files, which allows the researchers to identify which messages were retrieved (i.e.,
clicked message page and stayed at least 1 s on the page) and written by each
Moon et al.
9
participant. The log data recorded users’ activities in the discussion group, including
what messages were requested by which users and when each request happened. The
message database recorded the posted messages, the user ID of the posters, and when
the messages were posted.
A Systematic Computer-Assisted Content Analysis
In particular, this study conducted a systematic computer-assisted content analysis
using the InfoTrend system. The major obstacles to describing and analyzing the
expressions from CMSS groups were the massive amounts of information, difficulties
in interpreting the contextual meanings in content, and the nonstandard nature of the
language used (e.g., typos, slangs, abbreviations). The InfoTrend system (Fan, 1990,
1994) is a computer software program for advanced content analyses, which allows
users to more precisely capture the semantic properties of content by applying dynamic
rules. Specifically, using the dynamic rule structure, researchers can capture the complex meaning of expressions composed of multiple concepts and ideas.
The content-coding procedure in this analysis combined a conventional deductive
processing, where prespecified analytic frameworks were examined by applying a preestablished dictionary to the content, with an inductive process that could be more
inclusive to new patterns of expressions and could enable a more comprehensive
description of expressions. In the deductive process, this study first defined emotional
support and informational support and identified the main categories for them based
on the previous literature (e.g., Braithwaite, Waldron, & Finn, 1999; Coulson,
Buchanan, & Aubeeluck, 2007; Cutrona & Suhr, 1994). Emotional support was
defined as a type of social support that contributes to feelings of being cared for and
loved, which consists of four subcategories: (a) empathy/sympathy, (b) encouragement/reassurance, (c) care/physical affection, and (d) universality/relationship.
Similarly, informational support was defined as a type of support that provides information and advice regarding the following eight subjects: (a) secondary treatment, (b)
side effects, (c) surgery, (d) diagnostic/symptoms, (e) psychosocial aspects, (f) general
breast cancer information, (g) other information, and (h) health system navigation.
From the prior literature (e.g., Alpers et al., 2005; Braithwaite et al., 1999; Coulson
et al., 2007; Cutrona & Suhr, 1994; Tausczik & Pennebaker, 2010), keywords relevant
to each emotional and informational support category were selected. Table 2 presents
the selected examples of expressions for each category.
The inductive process was conducted following a deductive process. This process
consisted of five steps, including (a) a keyword search, (b) a grounded examination,
(c) natural language processing, (d) rule creation, and (e) rule testing. InfoTrend generated a data set containing specific keywords or concepts that were suggested by
previous studies (keyword search), and the data was examined in an inductive manner
to understand the usage patterns of keywords in context (grounded examination). The
next step (natural language processing) included lemmatizing and extraction: The former denotes the process in which variations of words in different tenses or forms (e.g.,
went, goes, going, and gone) are integrated into their original forms (e.g., go); the
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Table 2. Examples of Keywords of Emotional and Informational Support Expressions.
Category
Emotional support
Empathy/sympathy
Encouragement/reassurance
Care/physical affection
Universality/relationship
Informational support
Secondary treatment
Side effects
Surgical information
Diagnostic/symptoms
Psychosocial
General breast cancer
information
Health system navigation
Other information
Examples
sorry (to hear that), afraid (that you), empathy,
sympathy, understand, worry, concern, etc.
hope, wish, trust, congratulation, cheer, hang in there,
stay strong, keep marching, keep your heads up, don’t
give up etc.
take care, hugs, kisses, love, with love, etc.
(I’m or we are) here for you, same boat, common, army
of CHESSling, sisterhood, not alone, together, buddy,
friend(s), etc.
chemo, hormone replacement, radiation, external beam,
Anastrozole, Tamoxifen, Fulvestrant, Taxotere, etc.
pain, sore, vomit, nausea, acid reflux, bloating, bone pain,
excessive bleeding, heart burn, rupture, etc.
dissection, anesthesia, mastectomy, lumpectomy,
lymphadenectomy, etc.
biopsy, bone scan, mammogram, MRI, lymph, tumor, etc.
antidepress, Celexa, Elavil, Luvox, wig, overweight, hair,
plastic surgeon, etc.
brac1, brac2, endoscopy, estrogen, gland, injection,
oncology, stage, etc.
insurance, Medicare, GHC, UnitedHealth, medical bill,
etc.
about CHESS, resource directory, resource guide, etc.
Note. CHESS = Comprehensive Health Enhancement Support System; MRI = magnetic resonance
imaging; GHC = Group Health Cooperative.
latter refers to the process by which a target word (e.g., hear) is distinguished from
other words that may have the same alphabet characters, yet have different meanings
(e.g., sphere, rehearsal). Based on the sentence-level analysis, coding rules were then
created by formulating a relationship between terms, phrases, or concepts (rule creation). For example, this study captured providing empathetic support, such as “I am
sorry for your loss” by combining two meaning categories (e.g., “emotional expression: sorry” and “reasons for emotion: others’ grief”), thereby distinguishing empathy
from general apologies, such as “I am sorry for my absence” or “Sorry for the late
response.”
Once the rules were established, they were tested on a random selection of data to
assess their performance in capturing the intended concept (rule testing). To reach a
high level of precision and consistency of rules and content analysis, the rules were
tested repeatedly by applying them to new message posts. After achieving a high
level of consistency in the rules, this study conducted a reliability test between
Moon et al.
11
human- and computer-coding results of a randomly selected set of 200 discussion
posts in a breast cancer discussion group. The results generated an estimate of 91.0%
agreement across the four emotional support expression categories (empathy: 90.9%;
encouragement: 88.4%; care: 92.0%; universality: 95.0%), and 85.4% agreement
across the eight subcategories of informational support (surgical: 91.8%; side effects:
75.2%; adjuvant treatment/pharmaceutical: 91.5%; diagnostic/symptoms; 85.7%;
general breast cancer information: 75.9%; health system navigation: 100.0%; psychosocial information: 80.0%; other information: 73.3%). Krippendorff’s alpha was
also calculated to assess agreement between the human coder and the computer on
each of the categories. The results indicated that the coding schemes for emotional
support (Krippendorff’s α = .80) and informational support (Krippendorff’s α = .70)
were reliable (Hayes & Krippendorff, 2007).
Measures
Independent variables. Receiving emotional support was measured by counting the
total number of messages containing emotional support expressions that were retrieved
by each newly diagnosed patient. Two different measures were separately calculated,
according to the message posters: receiving survivor-provided emotional support (M
= 100.90, SD = 241.27) and receiving new patient–provided emotional support (M =
246.65, SD = 481.87).
Receiving informational support was calculated by counting the total number of
messages containing informational support that were requested by each newly diagnosed patient. After identifying the message posters, receiving survivor-provided
informational support (M = 72.08, SD = 162.93) and receiving new patient–provided
informational support (M = 247.88, SD = 241.27) were calculated separately for each
new patient.
Dependent variables. The primary dependent variables for H1a and H1b were providing emotional support and providing informational support. Providing emotional support by newly diagnosed patients was calculated by averaging the number of
expressions that included any of the four types of emotional support in the messages
posted by newly diagnosed patients (M = 1.23, SD = 1.82). In the same manner, providing emotional support by survivors was also calculated separately (M = 2.87, SD =
2.32). Similarly, providing informational support was measured by calculating the
average of the number of expressions, including any of the eight types of informational support within the messages posted by newly diagnosed patients (i.e., providing
informational support by newly diagnosed patients, M = 1.83, SD = 2.17) and survivors (i.e., providing informational support by survivors, M = 3.16, SD = 2.16),
respectively.
The primary outcomes of H2a, H2b, H3a, and H3b included gain scores (i.e.,
improvement) in psychosocial conditions, such as the quality of life, depression, cancer information competence, and breast cancer knowledge, respectively. As this study
focused on the impact of support provided by survivors and newly diagnosed patients
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Journalism & Mass Communication Quarterly
on improvements in the psychological status of patients, each outcome variable was
constructed by calculating the differences between the pretest and posttest scores.
Quality of life was measured by the abbreviated version of the World Health
Organization Quality of Life (WHOQOL-BREF) instrument, which consists of 26
items to measure physical health, psychological health, the environment, and social
relationships of individuals (pretest α = .91, posttest α = .93). The difference in the
quality of life between pretest and posttest was used in the analysis (M = 0.05, SD =
0.44). To assess current levels of depressive symptomatology, a short eight-item
Center for Epidemiologic Studies Depression (CES-D) scale (Radloff, 1977) was used
(pretest α = .88, posttest α = .86). A gain score between the pre- and posttest was used
as the outcome depression variable (M = −0.37, SD = 0.68). The measure for cancer
information competence consisted of five items (5 points), assessing the participant’s
comfort level in dealing with cancer information (pretest α = .81, posttest α = .83).
Similar to the other outcome variables, a gain score between the posttest and pretest
was used as the outcome cancer information competence variable (M = 0.27, SD =
0.75). Breast cancer knowledge was measured with a six-item measure (5 points) that
evaluated the level of understanding of breast cancer and treatment (pretest α = .88,
posttest α = .90). The difference between posttest and pretest was used as the final
primary outcome of this study (M = 0.54, SD = 0.76).
Control Variables
To examine the contribution of receiving social support from survivors and other new
patients with respect to the psychological adjustment of new patients, the present study
controlled for demographics (e.g., age, race, education level, annual household
income), living condition (living alone or not), and study condition (access to the full
CHESS or not). In addition, the total volume of messages posted by each patient (M =
21.46, SD = 54.54) and the total volume of messages read by each patient (M = 466.23,
SD = 934.67) were also included in the control variables to rule out potential confounding effects of overall reading and posting messages. Table 3 presents descriptive
statistics for the variables in the analyses.
Analysis
To test H1a and H1b, this study first conducted a t test comparing the differences in
providing supportive messages between survivors and newly diagnosed patients
(Analysis 1). The present study further tested H2a, H2b, H3a, and H3b by using ordinary least squares (OLS) regression (Analysis 2). For OLS regression, this study
entered control variables in the first block. The main predictors such as receiving emotional support which was provided by survivors and newly diagnosed patients, respectively, were included in the second block for the models to test H2a (Model 1) and
H2b (Model 2). Similarly, receiving of informational support provided by survivors
and newly diagnosed patients were included in the second block to test H3a (Model 3)
and H3b (Model 4). The statistical significance of the models was validated by an F
test for an ANOVA at the 95% confidence level.
13
Moon et al.
Table 3. Description of Variables.
Age
Education
Income
Total volume of writing
Total volume of reading
Receiving emotional support
From newly diagnosed patients
From survivors
Receiving informational support
From newly diagnosed patients
From survivors
∆Quality of lifea
∆CES-Da
∆Cancer information competencea
∆Cancer knowledgea
n
M
SD
Minimum
Maximum
234
235
217
236
236
51.18
5.52
4.09
21.46
466.23
9.05
1.84
1.57
54.54
934.67
26
1
1
0
0
78
8
6
426
7,121
236
236
241.43
73.11
478.04
210.12
0
0
3,237
1,590
236
236
202
201
202
194
242.63
52.23
0.05
−0.37
0.27
0.54
478.49
142.28
0.44
0.68
0.75
0.76
0
0
−0.96
−2.50
−2.00
−2.00
3,091
1,135
1.50
2.25
2.20
2.88
Note. CES-D = Center for Epidemiologic Studies Depression scale.
aValues represent differences between the posttest and pretest.
To evaluate the H2a, H2b, H3a, and H3b more precisely, this study further tested
whether standardized beta coefficients of survivor-provided support were statistically
larger than those of social support provided by new patients based on Cumming’s
(2009) approach of statistical inference from confidence intervals. For this purpose,
the corresponding 95% confidence intervals for the standardized beta coefficients of
main predictors (i.e., receiving emotional and informational support provided by survivors and new patients) were estimated via bias-corrected bootstrapping (1,000 resamples) for each model, and then the overlaps between confidence intervals were
calculated. The beta coefficients were considered statistically significantly different
from each other if the overlaps between confidence intervals were smaller than 80%
(one-tailed, p < .05; Cumming, 2009).
Results
Differences in Providing Social Support Between Survivors and New
Patients
To test the differences in supportive behavior between survivors and newly diagnosed
patients, t tests were conducted. H1a predicted that survivors would provide more
emotional support than newly diagnosed patients. Confirming this, the average amount
of emotional support expressions in the messages posted by breast cancer survivors
was significantly greater than that in the messages written by newly diagnosed patients
(t = 6.23, df = 62.15, p < .001). The difference in providing emotional support between
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Journalism & Mass Communication Quarterly
Table 4. Differences in Providing Informational and Emotional Support Between Newly
Diagnosed Patients and Survivors.
Emotional support
Empathy/sympathy
Encouragement/reassurance
Care/physical affection
Universality/relationship
Informational expression
Secondary treatment
Side effects
Surgical information
Diagnostic/symptoms
Psychosocial
Breast cancer
Health system navigation
Other information
Newly diagnosed
patients (n = 236)
Survivors
(n = 56)
M (SD)
M (SD)
t (df)
0.40 (0.55)
0.02 (0.04)
0.16 (0.27)
0.19 (0.32)
0.02 (0.06)
1.42 (1.91)
0.60 (0.87)
0.19 (0.35)
0.24 (0.46)
0.16 (0.33)
0.10 (0.26)
0.07 (0.16)
0.03 (0.11)
0.05 (0.11)
1.31 (1.06)
0.12 (.20)
0.52 (0.49)
0.54 (0.56)
0.13 (0.22)
2.19 (2.40)
0.89 (1.20)
0.44 (0.54)
0.27 (0.36)
0.33 (0.58)
0.08 (0.13)
0.10 (0.21)
0.04 (0.15)
0.06 (0.10)
6.23*** (62.15)a
3.63*** (56.23)a
5.25*** (63.35)a
4.48*** (63.86)a
3.74*** (56.73)a
2.57** (290)
2.06* (290)
3.32*** (66.61)a
0.44 (290)
2.10*** (63.54)a
0.60 (290)
1.15 (290)
0.76 (290)
0.71 (290)
aEqual variances are not assumed because Levene’s test for equality of variances was statistically
significant.
*p < .05. **p < .01. ***p < .001 (all p values are one-tailed).
survivors and newly diagnosed patients was found to be significant across all four
subcategories of emotional support (see Table 4): empathy/sympathy (t = 3.63, df =
56.23, p < .001), encouragement/reassurance (t = 5.25, df = 63.35, p < .001), care/
physical affection (t = 4.48, df = 63.86, p < .001), and universality/relationship (t =
3.74, df = 56.73, p < .001).
As H1b predicted, breast cancer survivors provided more informational support
than newly diagnosed patients (t = 2.57, df = 290, p < .01). Specifically, as Table 4
presents, this difference was driven by differences in providing information about secondary treatment (t = 2.06, df = 290, p < .05), side effects (t = 3.32, df = 66.61, p <
.001), and diagnostic/symptoms (t = 2.10, df = 63.54, p < .001). However, there were
no significant differences found in providing informational support between survivors
and newly diagnosed patients regarding information on surgery, psychosocial problems, general breast cancer, health system navigation, and other information.
Effects of Receiving Social Support
H2a predicted that the impact of survivor-provided emotional support on the improvement of the quality of life would be stronger than that of emotional support provided
by new patients. Table 5 presents a summary of the OLS regression model (Model 1)
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Moon et al.
Table 5. Summary of Hierarchical Regression Analysis for Variables Predicting Changes in
Quality of Life and Depression.
Model 1: Quality of life
change (n = 186)
B
Block 1: Control variables
Age
Race (minority = 1)
Education
Income
Living alonea
Study conditionb
Total volume of writingc
Total volume of readingc
∆R2 (F change)
Block 2: Receiving ES
From new patientsc
From survivorsc
∆R2 (F change)
Total R2 (F)
SE
β
Model 2: CES-D change
(n = 186)
B
SE
β
.00
.00
.13
.13
−.03
.02
−.03
.02
−.08
.10
−.04
.04
−.08**
.04
.04
.02
.08 (1.96)
−.06
.07
−.12
−.10
−.06
−.08
−.29**
.21
.01
.01
.12
.21
.01
.03
.02
.04
.05
.16
.04
.06
.08
.06
−.03
.03
.04 (0.08)
.11
.04
.03
.04
.02
.04
.17
−.11
.00
.00
.01*
.00
.04* (3.61)
.118* (2.34)
.01
.24*
.00
.00
−.00*** 0
.07** (6.47)
.102* (1.99)
.01
−.32***
Note. CES-D = Center for Epidemiologic Studies Depression scale; ES = emotional support; CHESS =
Comprehensive Health Enhancement Support System.
aLiving alone is coded as (0) no and (1) yes.
bStudy condition is coded as (0) CHESS information and communication services only group and (1) full
CHESS and mentor group and full CHESS group.
cValues were log transformed.
*p < .05. **p < .01. ***p < .001.
for H2a. The results showed that, after controlling for age, gender, education, study
conditions, the total volume of messages posted, and the total volume of messages
read, only receiving survivor-provided emotional support was positively related to an
improvement in the quality of life (b = .01, SE = .00, β = .25, p < .05). However, the
relationship between receiving emotional support provided by other new patients and
an improvement in the quality of life was not statistically significant (b = .00, SE = .00,
β = .10, p = .96). The result of the F test indicated that the final model was statistically
significant, explaining 11.8% of the variance in an improvement in the quality of life,
R2 = .118, F(10, 175) = 2.40, p < .05. Although it was relatively small in magnitude,
including predictors (i.e., receiving of emotional support from survivors and other new
patients) improved the model fit significantly, ∆R2 = .04, ∆F(2, 175) = 3.61, p < .05.
To test H2a more precisely, this study tested whether the standardized beta of survivor-provided emotional support was significantly larger than that of new patient–
provided emotional support. For this purpose, the corresponding 95% confidence
intervals of standardized coefficients of main predictors were first estimated via
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Journalism & Mass Communication Quarterly
Figure 1. Plots for 95% confidence intervals of the standardized coefficients of the main
predictors: Receiving ES.
Note. ES = emotional support; CES-D = Center for Epidemiologic Studies Depression scale.
bias-corrected bootstrapping (1,000 resamples). As illustrated in Figure 1, half of the
80% (one-tailed) of the overlapping confidence intervals was calculated (.158) and
added to the lower bound estimate of the standardized beta weight for the survivorprovided emotional support (.050), which yielded .208. As the upper bound estimate
of emotional support provided by new patients (.205) did not exceed .208, the standardized coefficient of survivor-provided emotional support (.245) was considered
statistically significantly larger than that of emotional support provided by new
patients (.006; one-tailed, p < .05), thereby supporting H2a. This result indicates that
receiving emotional support provided by survivor was more strongly related to improving patients’ quality of life than receiving emotional support provided by other newly
diagnosed patients.
H2b predicted that emotional support provided by survivors would be more
strongly associated with the reduction of depression. As Table 5 shows (Model 2),
receiving survivor-provided emotional support was positively related to a reduction in
the level of depression (b = −.00, SE = .00, β = −.32, p < .001). However, there was not
a significant relationship between receiving emotional support provided by other new
patients and the reduction of depression. The final model (Model 2) was found to be
statistically significant, explaining 10.2% of the variance in the reduction in newly
diagnosed patients’ depression, R2 = .102, F(10, 175) = 1.99, p < .05. In addition, the
inclusion of the predictors (i.e., receiving of emotional support from survivors and
other new patients) improved the model fit significantly, ∆R2 = .07, ∆F(2, 127) = 6.47,
p < .01.
As can be seen in Figure 1, the standardized coefficient of survivor-provided
emotional support (−.322) was statistically significantly smaller (i.e., a larger
17
Moon et al.
Table 6. Summary of Hierarchical Regression Analysis for Variables Predicting Changes in
Cancer Information Competence and Cancer Knowledge.
Model 3: Cancer information
competence change (n = 186)
B
Block 1: Control variables
Age
Race (minority = 1)
Education
Income
Living alonea
Study conditionb
Total volume of writingc
Total volume of readingc
∆R2 (F change)
Block 2: Receiving IS
From new patientsc
From survivorsc
∆R2 (F change)
Total R2 (F)
SE
Model 4: Breast cancer
knowledge change
(n = 181)
β
B
.00
.03
−.05
−.04
−.37*
−.05
−.08
−.03
.01
.23
.03
.04
.17
.07
.06
.04
.05 (1.15)
−.05
.01
−.11
−.08
−.16*
−.05
−.16
−.11
−.01
−.14
.04
−.01
.24
−.04
−.07
.05
.00*
.00
.00
.00
.06** (6.10)
.111* (2.19)
.26*
.17
.00
.00
SE
.01
.22
.03
.04
.18
.07
.06
.04
.08† (1.81)
β
−.13
−.05
.10
−.02
.10
−.04
−.14
.16
.00
.21
.00
−.11
.02 (1.54)
.09† (1.76)
Note. IS = informational support; CHESS = Comprehensive Health Enhancement Support System.
aLiving alone is coded as (0) no and (1) yes.
bStudy condition is coded as (0) CHESS information and communication services only group and (1) Full
CHESS and Mentor group and Full CHESS group.
cValues were log transformed.
†p < .10. *p < .05. **p < .01. ***p < .001.
negative association) than that of emotional support provided by new patients (.007)
because the upper bound estimate of beta weight of survivor-provided emotional
support (−.108) did not exceed −.072, the 80% overlap threshold (one-tailed, p <
.05). H2b therefore was supported, suggesting that receiving survivor-provided
emotional support contributed to a greater amount of reduction in depressive symptoms among patients than did receiving emotional support from the other newly
diagnosed patients.
H3a predicted that the impact of survivor-provided informational support on
improving cancer information competence would be stronger than that of informational support provided by new patients. As shown in Table 6, receiving of survivorprovided informational support was not significantly related to improving cancer
information competence (b = .00, SE = .00, β = .17, p = .08), whereas receiving informational support offered by other newly diagnosed patients was found to have a positive relationship with improved cancer information competence (b = .00, SE = .00, β =
.26, p < .05). In contrast to H3b, only informational support provided by new patients
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Table 7. Estimated CIs of Standardized Betas of Main Predictors.
CIb (95%)
DVsa
Main predictors
β
Lower
Upper
∆QoL
ES from survivors
ES from new patients
ES from survivors
ES from new patients
IS from survivors
IS from new patients
IS from survivors
IS from new patients
.245
.006
−.322
.007
.173
.260
−.114
.211
.009
−.214
−.571
−.267
−.092
.057
−.420
−.081
.468
.204
−.108
.221
.445
.441
.180
.536
∆CES-D
∆CIC
∆BCK
50% overlap
(two-tailed)c
80% overlap
(one-tailed)d
.181
.273*
−.145
.072*
.176
.247
.066
.154
Note. DV = dependent variables; CI = confidence interval; QoL = quality of life; ES = emotional support;
CES-D = Center for Epidemiologic Studies Depression scale (depression); CIC = cancer information
competence; IS = informational support; BCK = breast cancer knowledge.
aDVs are the gain scores of variables between the pre- and posttest.
bCIs were estimated via a bias-corrected bootstrap (1,000 resamples).
cThe values were calculated by adding half of 50% of the overlapping CIs to the lower bound estimates
of the variables with the greater standardized betas. In the event that the upper bound estimates of the
variables with the smaller standardized betas are smaller than these values, the overlapping CIs are smaller
than 50%, confirming that the betas are statistically different from each other (p < .05, two-tailed).
dThe values were calculated by adding half of 80% of the overlapping CIs to the lower bound estimates
of the variables with the greater standardized betas. In the event that the upper bound estimates of the
variables with the smaller standardized betas are smaller than these values, the overlapping CIs are smaller
than 80%, confirming that the betas are statistically different from each other (p < .05, one-tailed).
*p < .05.
was positively related to increased cancer information competence of patients.
Therefore, H3a was rejected. It was found that the final model (Model 3) was statistically significant, explaining 11.1% of the variance in improved cancer information
competence among patients, R2 = .111, F(10, 175) = 2.19, p < .05. Although the magnitude was small, the contribution of including informational support receptions to this
model was found to be significant, ∆R2 = .06, ∆F(2, 175) = 6.10, p < .01. As Table 7
and Figure 2 show, the difference in magnitude of the standardized betas of main predictors was found to be not statistically significant (p < .05, one-tailed) because the
upper bound estimate of the beta coefficient of the survivor-provided informational
support (.445) exceeded the threshold of an 80% overlap (.247).
H3b predicted that the effect of informational support provided by survivors on
cancer information competence would be statistically larger than that provided by
new patients. The result showed that neither informational support provided by survivors (b = −.00, SE = .00, β = −.11, p = .25) nor by newly diagnosed patient (b = .00,
SE = .00, β = .21, p = .09) was not related to changes in breast cancer knowledge
among patients (see Table 6). Thus, H4b was rejected. The final model for breast
cancer knowledge improvement (Model 4) was not significant, R2 = .091, F(10, 170)
= 1.76, p = .71.
Moon et al.
19
Figure 2. Plots for 95% confidence intervals of the standardized coefficients of the main
predictors: Receiving IS.
Note. IS = informational support.
Table 7 presents 95% confidence intervals of the standardized coefficients of the
main predictors for each model and the thresholds of 50% (two-tailed, p < .05) and
80% (one-tailed, p < .05) overlaps.
Discussion
This study sought to investigate whether social support provided by breast cancer
survivors differs from that provided by new patients, and how social support of survivors contributes to the psychosocial adjustment of newly diagnosed patients in a peerto-peer CMSS group. It was predicted that breast cancer survivors would provide more
emotional (H1a) and informational support (H1b) than newly diagnosed patients. The
present study further hypothesized that receiving emotional support provided by survivors would have stronger positive relationships with the improvement of quality of
life (H2a) and the reduction of depression (H2b) than receiving emotional support
from other newly diagnosed patients. Similarly, this study predicted that receiving
informational support provided by survivors would have a stronger positive impact on
improving cancer information competence (H3a) and enhancing breast cancer knowledge (H3b) than did receiving informational support provided by other newly diagnosed patients.
The findings supported H1a and H1b. Messages provided by breast cancer survivors included more emotional and informational support than those by newly diagnosed breast cancer patients. Although the number of survivors was much smaller than
that of new patients, the results show that survivors accounted for nearly half of the
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Journalism & Mass Communication Quarterly
messages posted (n = 8,986, 49.2%), and their messages contained more emotional
and information support. The differences in providing emotional support between survivors and newly diagnosed patients were evident across all four types of emotional
support. However, the differences in providing information support were significant
only in providing information about secondary treatment, side effects, and diagnostic/
symptoms. Although the current study cannot provide conclusive evidence for this, it
seems that the survivors focused more on information which could be connected with
their own experiences than on general information such as health system navigation
and general breast cancer information.
The findings from the analyses of the impact of receiving emotional support
affirmed H2a and H2b. The results showed that the contributions of emotional support
provided by survivors to an improved quality of life and reduced depression among
patients were greater than those of emotional support provided by new patients.
However, emotional support offered by newly diagnosed patients was found to have
no impact on the psychological adjustment of patients. Although it could not be fully
confirmed by an empirical test due to a lack of information, the results can be explained
by upward identification. As Stanton et al. (1999) explained, patients might want to
find hope and learn coping strategies from those who are in a better situation. Emotional
support from other newly diagnosed patients, who were likely to be in a similar situation, could be perceived as less attractive and helpful to patients.
Another unexpected finding was that survivor-provided informational support did
not contribute to improvement in either cancer information competence or breast cancer knowledge of new patients. Consistent with previous studies (Chen, 2012; Sullivan,
2003), informational support was frequently provided by both survivors and newly
diagnosed patients in this study. However, neither survivor-provided nor patient-provided informational support was related to improved breast cancer knowledge. Only
informational support provided by other new patients was positively related to
enhanced cancer information competence. These findings were intriguing; although
the overall results seem to be consistent with some of the previous studies that have
shown the limited educational benefits of informational support in peer-led support
groups (e.g., Helgeson, Cohen, Schulz, & Yasko, 2000), the positive effect of informational support provided by other newly diagnosed patients cannot be easily explained.
Further research needs to be performed to examine whether this difference resulted
from qualitative differences (e.g., relevance, novelty) between patient- and survivorprovided information and how patients evaluate and perceive informational support
provided by patients and survivors differently.
Limitations
As a secondary analysis, this study had some limitations. First, the current study could
not explain the underlying psychological mechanism through which newly diagnosed
patients benefited from emotional support provided by survivors. Because of the limited information about the patient’s motivations and perceptions toward survivors or
Moon et al.
21
other patients, this study could not provide conclusive evidence of the psychological
process such as upward comparisons to survivors or downward contrasts to other
patients. Future research may enrich the findings of this study by examining a detailed
process of the social comparisons that newly diagnosed patients may experience.
Second, the lack of detailed information about survivors in this study prevented
further investigation of the topics, such as posttraumatic growth and helping behavior,
motivations of providing support, and survivors’ perceived benefits from participating
in peer-to-peer CMSS groups. Previous studies have indicated that survivors derive
benefits such as self-empowerment and a better quality of life by sharing their experiences and providing emotional support to others (Barak et al., 2008; Sharf, 1997;
Sutton & Erlen, 2006; van Uden-Kraan et al., 2008). Further study will need to be
performed on which motivations spur survivors to participate in CMSS group and how
survivors can benefit from participating in CMSS groups.
Finally, although this study found that survivor-provided emotional support contributed to an improved quality of life, the average change in quality of life was very
small (M = 0.05, SD = 0.44). This may be due to the large variance among patients,
that is, the quality of life of some patients improved a great deal, whereas that of others
declined quite a bit. This result may alternately suggest that some patients can benefit
more from receiving emotional support than other patients. Future research will need
to investigate who can benefit more from participating in CMSS groups and why some
patients cannot benefit from it.
Implications
Despite these limitations, the present study contributes to providing empirical evidence regarding the impact of social support provided by breast cancer survivors. This
study shows that the impact of social support can differ according to who provided it
and that survivor-provided emotional support in particular is more effective in improving quality of life and alleviating depression of patients. Although some studies have
found that reading survivors’ personal stories is related to better cognitive and behavioral outcomes in new patients (Kreuter et al., 2008; McQueen & Kreuter, 2010), the
role of survivors in these studies was relatively limited because they could not directly
interact with other patients. Moreover, the few studies that allowed survivors to communicate with other patients (e.g., Lieberman & Russo, 2002; Sharf, 1997) did not
explain how survivors interacted with new patients or how survivors’ support affected
the cognitive and behavioral adjustment of new patients. Given the paucity of research
on survivors’ behavior and role in CMSS groups, the findings of this study can serve
as a starting point for further research regarding the role of cancer survivors in CMSS
groups.
Another contribution of this study is its advanced methodology. The present study
introduced a novel methodology to capture the contextual meaning of expressions
more precisely and to analyze a massive amount of content from CMSS groups. The
combination of deductive and inductive processes allowed researchers to match
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Journalism & Mass Communication Quarterly
concepts with actual usage in the content and to revise the coding rules accordingly. In
addition, with these dynamic rules, it was possible to capture the contextual meanings
of expressions more precisely, beyond merely counting the number of specific words.
This methodology can be used to analyze content from many computer-mediated or
mobile communications, which is usually characterized by its massiveness of amount
and nonstandard nature of language usage.
A further important contribution of this study is that the findings of this study provide helpful insights for health care providers who will develop peer-to-peer support
programs for breast cancer patients. On one hand, given the importance of survivors in
providing support and the impact of their emotional support on new patients, health
care providers will be able to develop more effective social support programs by
encouraging survivors’ participation. On the other hand, based on the limited evidence
regarding the impact of peer-provided informational support, health care providers
may need to consider how to provide adequate informational support to patients in
addition to peer support groups.
Although this study was conducted in the United States, it also has practical implications for other countries especially where social support for breast cancer patients
is not sufficient. For example, breast cancer incidence and mortality are higher in
Japan, Singapore, and Hong Kong than in the other Asian countries (Curado, 2011).
Studies have found that cultural characteristics in these countries, such as stigmatization, strong family bond, and interpersonal responsibility, may hinder patients from
receiving adequate social support beyond their family members, thereby contributing
to poor prognosis (Ikeda et al., 2013; Makabe & Hull, 2000; Ng et al., 2016). Given
the limited social support and cultural barriers in these countries, CMSS groups in
which patients can communicate with survivors can be more valuable sources of
social support.
Finally, the findings of this study are particularly pertinent to the less-developed
countries of South Asia, Latin America, and Africa. Given the limited resources and
social support available to patients in these countries (Chib, 2013), survivor-provided
social support in CMSS groups can be indispensable for psychosocial adjustment of
patients. Although it is difficult to use CMSS groups based on laptops or desktops in
these countries due to the low Internet penetration rate, mobile technologies have
become more available in underdeveloped countries. A growing number of studies
have shown that mobile technologies offer cost-effective tools for prevention, management, and treatment of various diseases in developing countries (e.g., Chib, van
Velthoven, & Car, 2015; Déglise, Suggs, & Odermatt, 2012; Gurman, Rubin, &
Roess, 2012). Furthermore, mobile technologies allow patients to receive social support in a more timely and convenient manner because they provide a wide variety of
communication tools including text messages, instant messaging, and phone calls
(Gustafson et al., 2011; Kahn, Yang, & Kahn, 2010). CMSS groups based on mobile
technologies, therefore, can be effective tools for providing social support to patients
in developing countries. Extending the findings of this study, future research needs to
examine the feasibility of CMSS groups based on mobile technologies and the survivors’ role therein.
Moon et al.
23
Declaration of Conflicting Interests
The author(s) declared no potential conflicts of interest with respect to the research, authorship,
and/or publication of this article.
Funding
The author(s) disclosed receipt of the following financial support for the research, authorship,
and/or publication of this article: The study was funded by P50 CA095817-05 from the National
Cancer Institute.
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Author Biographies
Tae-Joon Moon is a PhD candidate in the School of Journalism and Mass Communication at
University of Wisconsin–Madison. His research topics include analysis of use patterns and the
feasibility of computer-mediated and/or smartphone-based health management system for people with chronic diseases.
Ming-Yuan Chih (PhD, University of Wisconsin–Madison, 2013; MPH, University of
Missouri–Columbia) is an assistant professor in the College of Health Sciences at University of
Kentucky, Lexington. His research focused on developing and implementing interventions that
enable patients and their families to play a central role in the management and improvement of
the patient’s health.
Dhavan V. Shah (PhD, University of Minnesota–Twin Cities, 1999) is Maier-Bascom Professor
at the University of Wisconsin–Madison, Director of the Mass Communication Research Center
(MCRC), and Scientific Director in the Center for Health Enhancement System Studies
(CHESS). His work concerns framing and cueing effects on social judgments, digital media
influence on civic and political engagement, and the impact of ICTs on chronic disease management. Across these domains of work, he has increasingly applied computational techniques to
tackle social science questions.
Woohyun Yoo (PhD, University of Wisconsin–Madison, 2014) is an assistant professor in the
Survey and Health Policy Research Center at Dongguk University. His research is grounded at
the intersections of emerging media technologies, health communication, and message effects.
David H. Gustafson (PhD in industrial engineering, University of Michigan–Ann Arbor,
1966). He is director of the Center for Health Enhancement systems studies at University of
Wisconsin–Madison. His research interests include applications of systems engineering to
address organizational and individual change in health.