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Useful Links for Patients

Rescue Breathing for Laryngectomees and Neck Breathers

 

Head and Neck Cancer Forum

Focusing on priority areas to improve the treatment and lives of people with head and neck cancers are highlighted in a unique new video series

"The Laryngectomee Guide” by I. Brook MD.

    Contains practical information on medical, dental and psychological issues, side effects of radiation and chemotherapy; speaking; airway, stoma, and voice prosthesis care, eating, swallowing, and travel.
    Available also as paperback at: https://dribrook.blogspot.com and Dr Brook's other book “My Voice, a physician’s personal experience with throat cancer” is also available on that website.

    The Swallows Australia  Head and Neck Cancer Support Group Magazine

    Support for all affected by head and neck cancer. https://www.yumpu.com/en/document/read/59181006/the-swallows-australian-edition-magazine

    "You can say That Again" by Alan Dear / The Cancer Council Australia / Laryngectomee Association of NSW

      An easily readable reference, guide and helpline for people who are about to have, or have had, a laryngectomy. 

      “Self Help for the Laryngectomee”  by E. Lauder.

        Contained useful information. Very useful to learn oesophageal speech. It helps understand becoming and learning to live as a laryngectomee.
        Available also in paperback from: https://www.electrolarynx.com

        "The Global Tracheostomy Collaborative" 

          Providing tracheostomy patient forums, education and resources. 

          https://globaltrach.org/collaborate/patients-families-portal/

          Head and Neck Cancer Resource- The Memorial Sloan Kettering Cancer Centre

            Resources to help people who have survived head and neck cancer manage the side effects of treatment, improve quality of life, and receive emotional support. It includes tips from other survivors, as well as from healthcare providers who treat people with head and neck cancer.

            https://www.mskcc.org/cancer-care/patient-education/resources-head-and-neck

            Handbook for laryngectomy patients

                Published by the British National Association of Laryngectomee Clubs. Has information about the stoma care and return to normal life. Can be downloaded at
                 

                "Going Home with a Laryngectomy Stoma: A Guide for Patients and Carers"

                  A guide for Laryngectomy patients from NSWHealth and Liverpool Hospital. 

                  https://www.swslhd.nsw.gov.au/cancer/pdf/goinghome.pdf

                  Book: Dying to Know: A Guide to Death for Everyone Alive.

                    We're all dying. Sooner or later we're going to croak, kick the bucket, give up the ghost, cash in our chips, shuffle off, bow out or go to our happy hunting ground. It's the one thing we all have in common. Yet no one seems to want to talk about it. 

                    The Groundswell Project

                      We build communities that respond compassionately around end of life. For our communities to take action, we must socialise the conversation about death, dying and bereavement by providing opportunities for the community to re-develop a shared language for talking and planning for end of life using local resources and information. This helps to build people’s death literacy and connects people to one another, where they live and online.

                      Articles of interest: 

                      The Cancer Council