Belinda Mason
Belinda Mason | |
|---|---|
| Born | Belinda Ann Mason July 2, 1958 Whitesburg, Kentucky, U.S. |
| Died | September 9, 1991 (aged 33) Nashville, Tennessee, U.S. |
| Resting place | Utica, Kentucky, U.S. |
| Parents |
|
Belinda Ann Mason (July 2, 1958 – September 9, 1991) was an American AIDS activist, policy advisor, and writer based in rural Kentucky. She was the first person with AIDS appointed to the U.S. National Commission on AIDS.[1]
Early life and diagnosis
[edit]Mason was born in Letcher County, Kentucky, in 1958. She was the daughter of state representative Paul Mason and Barbara McIntyre.[2] She attended the University of Kentucky, graduating in 1980 with a bachelor's degree in journalism.[3] Over the following seven years, she worked as a reporter for two newspapers, the Ohio County Times-News in Hartford and the Appalachian News-Express in Pikeville, and began writing fiction. Her short stories were published in The American Voice and Appalachian Review. Mason also wrote several plays, one of which was produced by Appalshop's Roadside Theater.[4]
On January 17, 1987, Mason required a blood transfusion while giving birth to her second child, Clayton, at Regional Medical Center of Hopkins County.[5] Some of the blood she received had not been previously tested; subsequent analysis revealed that it was contaminated with AIDS, and Mason tested positive for AIDS soon after leaving the hospital.[6]
Mason and her husband, Steve Carden, sued Regional Medical Center of Hopkins County and won an out-of-court settlement.[5]
Activism
[edit]Following her diagnosis, Mason traveled throughout the United States speaking about her experience with AIDS and the importance of HIV prevention education.[7]
Mason cofounded the Kentuckiana People with AIDS Coalition (KIPWAC), the first organization for people with AIDS from Kentucky and Indiana, with Ron Jerrell in August 1988. She served a one-year term as president of KIPWAC and remained the chair emeritus of its board of directors until her death.[8]
In 1988, Mason became president of the National Association of People with AIDS.[1] She also served as director of the Washington, D.C. lobbying coalition AIDS Action Council.[9]
Mason testified before the U.S. Senate as part of a joint congressional hearing on the Americans with Disabilities Act in September 1988, making her the first known person with HIV or AIDS to testify before Congress[10] and ultimately contributing to the legislation's passage in 1990.[11]
President George H. W. Bush appointed Mason to the National Commission on AIDS in July 1989; she was the first person with AIDS ever to serve on the commission.[1] During her tenure, Mason was an outspoken critic of the Bush administration's AIDS policy, accusing Bush of "treating AIDS as a moral issue rather than as a public-health issue".[9] She vocally opposed mandatory HIV testing for medical workers and bans on people with AIDS entering the United States, two policies popular with the administration at the time,[12] and urged the U.S. Food and Drug Administration to approve AIDS drugs other than AZT.[9]
Death and legacy
[edit]Mason's health began to fail in early 1991, leading her to seek care at Vanderbilt University Medical Center. She died there of AIDS-related pneumonia on September 9, 1991, at the age of 33.[12] Her seat on the National Commission on AIDS was filled by basketball player Magic Johnson.[13]
Appalshop produced a documentary about Mason's activism, Belinda, during the final year of her life. Belinda was released in 1992 and won the CINE Golden Eagle Award.[14]
Western Kentucky University annually awards the Ron Jerrell and Belinda Mason Scholarship to a journalism student affected by HIV.[15]
References
[edit]- ^ a b c "Appointment of Five Members of the National Commission on Acquired Immune Deficiency Syndrome | The American Presidency Project". www.presidency.ucsb.edu. Retrieved July 22, 2022.
- ^ "Belinda Mason's funeral is tomorrow in Hartford". The Courier-Journal. September 11, 1991. p. 3.
- ^ Ballard, Sandra L.; Hudson, Patricia L. (July 24, 2013). Listen Here: Women Writing in Appalachia. University Press of Kentucky. ISBN 978-0-8131-4358-3.
- ^ "Belinda Mason papers, 1978-2000". exploreuk.uky.edu. Retrieved July 21, 2022.
- ^ a b "Mason v. Regional Medical Center of Hopkins County, 121 F.R.D. 300". Casetext Search + Citator. Retrieved July 21, 2022.
- ^ "Belinda Mason, 33, Outspoken As Member Of Aids Commission". The Seattle Times. Retrieved July 21, 2022.
- ^ "Bush Saddened at AIDS Panelist's Death". Deseret News. September 10, 1991. Retrieved July 22, 2022.
- ^ "Belinda Mason Obituary". September 13, 1991. Retrieved July 22, 2022.
- ^ a b c "AIDS Activist Belinda Mason Dead at 33". AP NEWS. Retrieved July 22, 2022.
- ^ "Equality of Opportunity: The Making of the Americans with Disabilities Act". ncd.gov. May 6, 2015. Retrieved July 25, 2022.
- ^ "Drafting and Introduction of the Original ADA Bill - Part 18". Burgdorf on Disability Rights. Retrieved July 23, 2022.
- ^ a b Hilts, Philip J. (September 10, 1991). "Belinda Mason, 33, U.S. Panelist And Bush Adviser on AIDS Policy". The New York Times. ISSN 0362-4331. Retrieved July 21, 2022.
- ^ "Johnson Considered for National AIDS Commision [sic]". Washington Post. ISSN 0190-8286. Retrieved July 21, 2022.
- ^ "Appalshop". Appalshop. Retrieved July 21, 2022.
- ^ "Scholarships & Grants". Western Kentucky University. Retrieved July 21, 2022.