Papers by Jorma Komulainen
IJQHC communications, 2022
Objectives: The aim of the study was to identify POs' views on the best ways to involve patient r... more Objectives: The aim of the study was to identify POs' views on the best ways to involve patient representatives and POs' potential roles in the guideline process. Patient involvement in guideline development has been endorsed. The international guideline community has developed a toolkit to describe methods and facilitate patient involvement. The most used methods are commentary on the draft guideline and acting as guideline panel members. However, knowledge of the patient organizations' (POs) perception of involvement is scarce. Methods: Representatives from 12 POs (n = 20) in Finland were invited to group interviews (n = 4, á 1.5 h). In the qualitative analysis, we deductively identified using the Guidelines International Network public toolkit the best ways to involve patient representatives and inductively analyzed general principles for involvement and how the POs consider their potential roles. Results: The interviewees raised three major principles for organizing patient involvement in guideline development: (i) different means of involvement, (ii) representativeness, and (iii) genuine and equal interaction. The interviewees endorsed involvement through statements and comments throughout the guideline process, and instead of participating in guideline panels as a member, they preferred reference groups or patients' networks. The interviewees saw various roles for POs in guideline development, for example acting as confidants for patient representatives, information production, active participation, commenting, and communicative activities to population. Conclusions: Guideline developers should offer various and easy ways of patient involvement. POs' representatives considered reference groups to be a superior method of participation compared to guideline panel members. Organizations are willing to support guideline development and patient representatives.
Research in Social & Administrative Pharmacy, Nov 1, 2016
Background: Ensuring patient involvement in health technology assessments (HTAs) and clinical pra... more Background: Ensuring patient involvement in health technology assessments (HTAs) and clinical practice guidelines (CPGs) is important. However, the goals and methods of such involvement are not always clear. Objectives: The aim of this study was to 1) discover ways to involve patients in HTA and CPG processes, 2) describe challenges, and 3) find ways of informing patients about HTAs and CPGs in Finland. Methods: As part of a one-day seminar targeted at representatives of patient organizations (POs), 3, 1-h focus group discussions were held (n ¼ 20, with 14 PO representatives). PO representatives included real patients and health care professionals working in the organizations. The discussions were tape-recorded, transcribed, and thematically analyzed. Results: Focus group participants highlighted the importance of gathering patient views from a group of patients, rather than individuals. Surveys through POs were the most frequently mentioned means of gathering patients' views. PO representatives reported interest in cooperating in HTA and CPG processes. The most often mentioned challenges were finding appropriate representatives for the target group and conveying information about HTAs and CPGs to patients. Multichannel communication was seen as essential. Furthermore the information should be readable, comprehensible, tailored, reliable, reusable, complementary, and timely. Conclusions: Possible strategies to involve patients in HTA and CPG processes were incorporating patient representatives in the CPG and HTA groups, offering timely possibility to participate, and ensuring reporting with clear and unambiguous language. The main identified challenge was finding appropriate representatives of the target group. The role of POs was seen as important particularly when informing the patients.
Implementation Science
Background Healthcare costs are rising, and a substantial proportion of medical care is of little... more Background Healthcare costs are rising, and a substantial proportion of medical care is of little value. De-implementation of low-value practices is important for improving overall health outcomes and reducing costs. We aimed to identify and synthesize randomized controlled trials (RCTs) on de-implementation interventions and to provide guidance to improve future research. Methods MEDLINE and Scopus up to May 24, 2021, for individual and cluster RCTs comparing de-implementation interventions to usual care, another intervention, or placebo. We applied independent duplicate assessment of eligibility, study characteristics, outcomes, intervention categories, implementation theories, and risk of bias. Results Of the 227 eligible trials, 145 (64%) were cluster randomized trials (median 24 clusters; median follow-up time 305 days), and 82 (36%) were individually randomized trials (median follow-up time 274 days). Of the trials, 118 (52%) were published after 2010, 149 (66%) were conducted...
IJQHC Communications
Objectives The aim of the study was to identify POs’ views on the best ways to involve patient re... more Objectives The aim of the study was to identify POs’ views on the best ways to involve patient representatives and POs’ potential roles in the guideline process. Patient involvement in guideline development has been endorsed. The international guideline community has developed a toolkit to describe methods and facilitate patient involvement. The most used methods are commentary on the draft guideline and acting as guideline panel members. However, knowledge of the patient organizations’ (POs) perception of involvement is scarce. Methods Representatives from 12 POs (n = 20) in Finland were invited to group interviews (n = 4, á 1.5 h). In the qualitative analysis, we deductively identified using the Guidelines International Network public toolkit the best ways to involve patient representatives and inductively analyzed general principles for involvement and how the POs consider their potential roles. Results The interviewees raised three major principles for organizing patient involve...
Duodecim; lääketieteellinen aikakauskirja, 1994
1 Tays Eye Centre, Tampere University Hospital, Tampere, FIN-33521, Finland 2 Medical Center Eken... more 1 Tays Eye Centre, Tampere University Hospital, Tampere, FIN-33521, Finland 2 Medical Center Ekenäs Öga, Tammisaari, FIN10600, Finland 3 Department of Ophthalmology, Seinäjoki Central Hospital, Seinäjoki, FIN-60220, Finland 4 Department of Ophthalmology, Helsinki University Hospital, Helsinki, FIN00029, Finland 5 Department of Dermatology and Allergology, Helsinki University Hospital, Helsinki, FIN00250, Finland 6 Wasaborg Eye Centre, Vaasa, FIN65100, Finland 7 Department of Ophthalmology, Oulu University Hospital, Oulu, FIN-90220, Finland 8 Chief Editor, Current Care Guidelines, the Finnish Medical Society Duodecim, Helsinki, FIN00101, Finland
European Journal of Public Health, 2007
Duodecim; laaketieteellinen aikakauskirja, 2014
Systematic reviews aim to systematically identify, critically assess and summarise all relevant s... more Systematic reviews aim to systematically identify, critically assess and summarise all relevant studies on a specific topic. The present article gives advice on how to find, assess and exploit systematic review on effectiveness. Systematic reviews on effectiveness constitute a source of knowledge for professionals within health care and welfare, researchers, developers and decision makers.
Template and an example for a Choosing Wisely recommendation, Current Care Guidelines. A structur... more Template and an example for a Choosing Wisely recommendation, Current Care Guidelines. A structured template for publishing Choosing wisely recommendations used in the project and one example of a Choosing Wisely Finland recommendation. (DOCX 19 kb)
between the pituitary gland and the testes: inverse relationship between serum FSH and inhibin B ... more between the pituitary gland and the testes: inverse relationship between serum FSH and inhibin B concentrations in boys in early puberty
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Papers by Jorma Komulainen